Accessibility statement

Understanding child and parent experiences of end-of-life care of children: a systematic review and qualitative synthesis

The end of life care phase for a child is when all curative options have been exhausted and care is focused on preparing for the anticipated death.  For children and their parents, this is an intensely painful and all consuming time. Parents will often bear a heavy responsibility for both the personal and nursing care of their child, and be involved in making difficult decisions such as the withdrawal of treatments. Understanding the experiences and perspectives of children and their parents of the care the child receives at the end of life, will help to inform the development of supportive services and interventions. While there have been a number of primary qualitative studies that report on these experiences, there is no up to date synthesis of these findings. This project will systematically identify relevant qualitative studies and produce a qualitative evidence synthesis to deepen understanding of both parent and child experiences.

 

Date

Start Date: January 2021
End Date: December 2021

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