Accessibility statement

Governance

Partnership Committee

  • Professor Karen Bloor, Professor of Health Economics and Policy 
  • Professor Neil Lunt, Professor of Social Policy
  • Dr Anne-Marie Childs, Consultant Paediatric Neurologist, Leed Teaching Hospitals Trust
  • Professor Patricia McKinney, Emeritus Professor of Paediatric Epidemiology, University of Leeds

Advisory Board

  • Dr Bob Phillips (Chair), Senior Clinical Academic, CRD, University of York
  • Dr Debbie Box, Speciality Doctor, Martin House Children’s Hospice
  • Sir Alan Craft, Emeritus Professor, Newcastle University
  • Dr Richard Hain, Lead Clinican in Paediatric Palliative Medicine in Wales. 
  • Prof Faith Gibson, Professor of Child Health and Cancer Care, University of Surrey
  • Sue Manning, Neuromuscular Specialist Care Advisor, Leeds Teaching Hospitals Trust
  • Professor Myra Blue-bond Langner, True Colours Chair in Palliative Care for Children and Young People
  • Professor David Abbott, Professor of Social Policy, University of Bristol, 
  • Professor Jane Noyes, Professor of Health & Social Services Research & Child Health, Bangor University 
  • Lizzie Chambers, Development Director, Together for Short Lives
  • Dr Pat Carragher, Medical Director, Children's Hospices Association Scotland (CHAS)
  • Prof Fliss Murtagh, Professor of Palliative Care, HYMS
  • Dr Mike Miller, Retired Consultant in Paediatric Palliative Medicine
  • Dr Sarah Mitchell, Senior Clinical Fellow, The University of Sheffield Medical School
  • Dr Sarah Burn, ST6 Community Paediatrics, York Hospital
  • Jason & Kristi Everest - Parent Representatives
  • Jane Green - Parent Representative
  • Kirsty Verney - Parent Representative 

 

The Partnership Committee is responsible for: monitoring the performance of the Centre against agreed KPIs; reviewing financial issues; taking decisions regarding the on-going support of the Centre by Martin House and the University of York; and working with the Centre Management Team in terms of strategic planning for the longer term future of the Centre and taking decisions associated with this.  Members of the Partnership Committee report back to the Martin House Board of Trustees and the University of York via Heads of Departments.

The Advisory Board provides a forum for discussion between the Centre staff and individuals ‘active’ in the field of children’s and adult palliative care. The Board acts as a ‘sounding board’ and ‘critical friend’ to the Centre and its senior staff with regards to: projects undertaken and focus of the workstreams, plans for future projects, dissemination and impact strategies.

The Centre Management Team is responsible for overseeing the day-to-day management and organisation of the Centre and its projects and, in consultation with the Advisory Board, making decisions regarding the specific projects undertaken and applications for research funding.

The Family Advisory Board (FAB) consists of parents and other adult family members of children and young people with life-limiting conditions or medical complexity. FAB members provide input on the Centre’s plans for current and future research, and advice about the development and co-ordination of Public Involvement for the Centre. Two FAB members also sit on the Centre’s Advisory Board.