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Publications

2020 

  • NEW - Paper in press, Nov 2020 entitled 'Estimating the current and future prevalence of Life-Limiting Conditions in Children in England' - Lorna Katharine Fraser. Palliative Medicine

  •  Paper published 10 Sept 2020 entitled 'Managing and sharing research data in children's palliative care: Risks, benefits and imponderables' - Nicky Harris, Jane Noyes, Lorna Fraser, Susie Lapwood, Emily Harrop, Maddie Blackburn, Jayne Price, Lizzie Chambers, Myra Bluebond-Langner, the Joint Research Group for Together for Short Lives/Association of Paediatric Pallative Medicine. Journal of Advanced Nursing

To download the full paper click on the link below:-

Managing and sharing research data in children's palliative care: Risks, benefits and imponderables


  •  Paper published July 2020 entitled 'Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink' - Lorna Katharine Fraser, Fliss E M Murtagh, Trevor Sheldon, Simon Gilbody, Catherine Hewitt. BMJ Open 

To download the full paper click on the link below:-

Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink


  •  Paper published May 2020, this mixed methods systematic review examined the impact of specialist paediatric palliative care for children and young people with cancer and explored the factors affecting access.

Despite advances in treatment, childhood cancer is still one of the leading causes of death in childhood and adolescence. This study looked at the role of specialist paediatric palliative care services, which are argued to be an important component of children and young people’s cancer services. The study examined existing evidence from 42 studies to explore the impact of these specialist services and identify the factors affecting access. These studies tell us that children who access specialist palliative care have less intensive care at the end-of-life, more advance care planning, and fewer hospital deaths compared with children who don’t access them. However, they can’t tell us whether these services improve children’s quality of life or symptom management. Children with blood cancers are the least likely to receive this specialist input, and clinician uncertainties about how, when and why to involve palliative care services are a key barrier to access. The outcome of the study proves we need further high-quality research to determine whether specialist paediatric palliative care improves quality of life for children and young people with cancer, and research that explores the views of children and young people.

'Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review' - Johanna Taylor, Alison Booth, Bryony Beresford, Bob Philips, Kath Wright, Lorna Fraser. Palliative Medicine, 2 May 2020

To download the full paper click on the link below:-

Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review 


  •  Paper published April 2020 entitled 'Advances and Challenges in European Paediatric Palliative Care' - Lorna K Fraser, Myra Bluebond-Langner, Julie Ling.  Medical Sciences, 17 April 2020

To download the full paper click on the link below:-

Advances and Challenges in European Paediatric Palliative Care


  •  Paper published 29 March 2020 entitled 'A protocol for a systematic review and meta-analysis to identify measures of breakthrough pain and evaluate their psychometric properties' - Katie Greenfield, Simone Holley, Daniel Eric Schoth, Julie Bayliss, Anna-Karenia Anderson, Satbir Jassal, Dilini Rajapakse, Lorna Katharine Fraser, Christine Mott, Margaret Johnson, Ian Wong, Richard Howard, Emily Harrop, Christina Liossi.  BMJ Open

To download the full paper click on the link below:-

A protocol for a systematic review and meta-analysis to identify measures of breakthrough pain and evaluate their psychometric properties


  •  Paper on GPs’ role in caring for children and young people with life-limiting conditions. Regular contact with the same GP associated with reduced emergency hospital care:-

Martin House Research Centre researchers have had a paper accepted on importance of the role that GPs play in the care of children and young people with life limiting conditions. To be published in the British Journal of General Practice, the paper shows that those individuals who saw a GP more regularly had fewer emergency inpatient admissions and A&E attendances. Those individuals who saw the same GP for more than two thirds of visits had fewer A&E attendances. The study therefore highlights the potential importance of regular contact with the same GP for CYP with LLCs and their families, alongside care provided by specialist paediatricians.

'GPs’ role in caring for children and young people with life-limiting conditions: a retrospective cohort study' - Stuart JarvisRoger C ParslowCatherine HewittSarah Mitchell and Lorna K Fraser.