Fraser, LK, Bedendo, A, O’Neill, M, Taylor, J, Hackett, J, Horridge, K, et al. ‘YourTube’ the role of different diets in gastrostomy-fed children: Baseline findings from a prospective cohort study.Dev Med Child Neurol. 2023; 00: 1–10 https://onlinelibrary.wiley.com/doi/10.1111/dmcn.15799
Mukherjee, S., Richardson, N. & Beresford, B. Hospital healthcare experiences of children and young people with life-threatening or life-shortening conditions, and their parents: scoping reviews and resultant conceptual frameworks.BMC Pediatr23, 366 (2023). https://doi.org/10.1186/s12887-023-04151
Papworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower RG, Phillips B, Hain R, Subramanian G, Haynes A, Fraser LK.Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study. BMC Palliative Care Aug 16;22(1):117 (2023)
Bedendo A, Hinde S, Beresford B, Papworth A, Phillips B, Vasudevan C, McLorie E, Walker G, Peat G, Weatherly H, Feltbower R, Hewitt C, Haynes A, Murtagh F, Noyes J, Hackett J, Hain R, Oddie S, Subramanian G,Fraser L Consultant-led UK paediatric palliative care services: professional configuration, services, funding. BMJ Support Palliative Care (2023)
McLorie EV,Fraser L, Hackett J Provision of care for children with medical complexity in tertiary hospitals in England: qualitative interviews with health professionals. BMJ Paediatrics Jul;7(1) (2023) https://bmjpaedsopen.bmj.com/content/7/1/e001932
Fields D,Fraser LK, Taylor J, Hackett J. What does 'good' palliative care look like for children and young people? A qualitative study of parents' experiences and perspectives. Palliative Medicine Mar;37(3):355-371 (2023) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10021114/
Barrett L, Fraser L, Noyes J, Taylor J, Hackett J. Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis. Palliative Medicine Feb;37(2):178-202 (2023) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9896294/
Scott, H. M., Coombes, L., Braybrook, D., Roach, A., Haroardottir, D., Bristowe, K., Ellis-Smith, C., Higginson, I., Gao, W., Bluebond-Langner, M., Farsides, B., Murtagh, F. E. E., Fraser, L.K., Harding, R. COVID-19: impact on pediatric palliative care 25 February 2022. Journal of Pain and Symptom Management
Jarvis, SW & Fraser, LK - 'Comparing routine inpatient data and death records as a means of identifying children and young people with life limiting conditions' Palliative Medicine.
Fraser, LK & Parslow, R - 'Children with Life-Limiting Conditions in Paediatric Intensive Care Units: a national cohort, data linkage study' Archives of Disease in Childhood, pp. 1-9. DOI: 10.1136/ archdischild- 2017- 312638
Fraser, LK, Fleming, S & Parslow, R - 'Changing Place of Death in Children who died after discharge from Paediatric Intensive Care Units: a national, data linkage study' Palliative Medicine, pp. 1-10. DOI: 10.1177/0269216317709711
Aldridge J, Shimmon K, Miller M, Fraser LK, Wright, B "I can't tell my child they are dying". Helping Parents Have Conversations With Their Child. Archives of Disease in Childhood 2017 March 13
Fraser, LK & Norman, P 2016, 'The use of routine data in health research; an example from palliative care'. in SAGE Research Methods Cases.
Jarvis, SW, Parslow, RC, Carragher, P, Beresford, BA & Fraser, LK 2016, 'How many Children and Young People with Life Limiting Conditions are clinically unstable?: a National data linkage study'
Bogosian, A, Van Vliet, LM, Craig, G, Fraser, LK & Turner-Cobb, JM 2016, 'Minding the gap and moving forward in children's long-term conditions: a vital role for health psychology' vol 21, no. 3., 10.1111/bjhp.12193
Woodcock, IR, Fraser, LK, Norman, P, Pysden, K, Manning, S & Childs, A-M 2016, 'The prevalence of neuromuscular disease in the paediatric population in Yorkshire, UK: variation by ethnicity and deprivation status' vol 58, no. 8, pp. 877–883., 10.1111/dmcn.13096
Fraser LK, Lidstone V, Miller M, Aldridge J, Norman P, McKinney PA et al. Patterns of diagnoses among children and young adults with life-limiting conditions: A secondary analysis of a national dataset. Palliative Medicine. 2014 Apr 3.
Norman P, Fraser L. Prevalence of life-limiting conditions in children and young people in England: Time trends by area type. Health & place. 2014 Mar;26:171-9.
Fraser LK, van Laar M, Miller M, Aldridge J, McKinney PA, Parslow RC, Feltbower RG. Does referral to specialist paediatric palliative care services reduce hospital admissions in oncology patients at the end of life? British Journal of Cancer. 2013, 108(6),1273-79.
Fraser LK, Miller M, Aldridge J, Norman P, Hain R, McKinney PA, Parslow RC. Rising National Prevalence of Life Limiting Conditions in Children in England. Pediatrics 2012 129 (4) e923-e929
Fraser LK, Aldridge J, Childs AM, Miller M, McKinney PA, Parslow RC. "A cohort study of children and young people with progressive neuromuscular disorders; clinical and demographic profiles and changing patterns of referral for palliative care" Palliative Medicine. 2012 26;924-929
Fraser LK, Manning S, Miller M, McCullough R, Aldridge J Childs AM.Hospice Provision and Usage amongst young people with Neuromuscular Disease in the United Kingdom. European Journal of Paediatric Neurology 2011. 15(4):326-330 Jul 2011
Fraser LK, Miller M, McKinney PA, Parslow RC, Feltbower RG. Referral to a Specialist Paediatric Palliative Care Service in Oncology Patients in Yorkshire, UK. Paediatric Blood and Cancer 15 Dec 2010
Fraser LK, Fleming T, Miller M, Draper ES, McKinney PA, Parslow RC. Palliative Care Discharge from Paediatric Intensive Care Units in Great Britain. Palliative Medicine 24(6):608-615 Sep 2010
Fraser LK, Miller M, Draper ES, McKinney PA, Parslow RC. Place of Death and Palliative Care following discharge from Paediatric Intensive Care Units. Archives of Disease in Childhood 06 Jul 2010
Taylor LK, Miller M, Joffe T, Parslow RC, Aldridge J, Bailey CC, McKinney PA. Palliative care in Yorkshire, UK 1987-2008: survival and mortality in a hospice. Archives of Disease in Childhood 95(2):89-93 Feb 2010
Department of Health Sciences, Seebohm Rowntree Building University of York,