Accessibility statement

Academic Publications

2023

2023

  • Fraser, LK, Bedendo, A, O’Neill, M, Taylor, J, Hackett, J, Horridge, K, et al. ‘YourTube’ the role of different diets in gastrostomy-fed children: Baseline findings from a prospective cohort study. Dev Med Child Neurol. 2023; 00: 1–10 https://onlinelibrary.wiley.com/doi/10.1111/dmcn.15799  
  • Papworth, A., Bedendo, A., Taylor, J., Beresford, B., Mukherjee, S., Fraser, L., Ziegler, L. A new scale assessing the stressors and rewards of children's hospice work.  BMC Palliative Care 22:136 (2023) https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-023-01246-w  
  • Bedendo A, Papworth A, Taylor J, Beresford B, Mukherjee S, Fraser L, Ziegler L Staff well-being in UK children's hospices: a national survey.  BMJ Support Palliative Care. Aug 29 (2023)
  • Mukherjee, S., Richardson, N. & Beresford, B. Hospital healthcare experiences of children and young people with life-threatening or life-shortening conditions, and their parents: scoping reviews and resultant conceptual frameworks. BMC Pediatr 23, 366 (2023). https://doi.org/10.1186/s12887-023-04151 
  • Papworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower RG, Phillips B, Hain R, Subramanian G, Haynes A, Fraser LK. Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study. BMC Palliative Care Aug 16;22(1):117 (2023)
  • Bedendo A, Hinde S, Beresford B, Papworth A, Phillips B, Vasudevan C, McLorie E, Walker G, Peat G, Weatherly H, Feltbower R, Hewitt C, Haynes A, Murtagh F, Noyes J, Hackett J, Hain R, Oddie S, Subramanian G, Fraser L Consultant-led UK paediatric palliative care services: professional configuration, services, funding.  BMJ Support Palliative Care (2023)
  • McLorie EV, Hackett J, Fraser LK. Understanding parents' experiences of care for children with medical complexity in England: a qualitative study.  BMJ Paediatrics Aug;7(1) (2023) https://bmjpaedsopen.bmj.com/content/7/1/e002057 
  • McLorie EV, Fraser L, Hackett J Provision of care for children with medical complexity in tertiary hospitals in England: qualitative interviews with health professionals.  BMJ Paediatrics Jul;7(1) (2023) https://bmjpaedsopen.bmj.com/content/7/1/e001932
  • Papworth A, Ziegler L, Beresford B, Mukherjee S, Fraser L, Fisher V, O'Neill M, Golder S, Bedendo A, Taylor J. Psychological well-being of hospice staff: systematic review.  BMJ Support Palliative Care April 25 (2023) https://spcare.bmj.com/content/early/2023/04/24/spcare-2022-004012.long 
  • Fields D, Fraser LK, Taylor J, Hackett J. What does 'good' palliative care look like for children and young people? A qualitative study of parents' experiences and perspectives.  Palliative Medicine Mar;37(3):355-371 (2023) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10021114/ 
  • Barrett L, Fraser L, Noyes J, Taylor J, Hackett J. Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis. Palliative Medicine Feb;37(2):178-202 (2023) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9896294/ 

2022

2022

2021

2021 

2020

2020

2019

2019

2018

2018

Pre 2017

Pre 2017

  • Taylor, J & Alridge, J - 'Exploring the rewards and challenges of paediatric palliative care work - a qualitative study of a mult-disciplinary children's hospice care team' BMC Palliative Care
  • Jarvis, SW & Fraser, LK -  'Comparing routine inpatient data and death records as a means of identifying children and young people with life limiting conditions' Palliative Medicine.
  • Fraser, LK & Parslow, R - 'Children with Life-Limiting Conditions in Paediatric Intensive Care Units: a national cohort, data linkage study' Archives of Disease in Childhood, pp. 1-9. DOI: 10.1136/ archdischild- 2017- 312638
  • Fraser, LK, Fleming, S & Parslow, R -  'Changing Place of Death in Children who died after discharge from Paediatric Intensive Care Units: a national, data linkage study' Palliative Medicine, pp. 1-10. DOI: 10.1177/0269216317709711
  • Aldridge J,  Shimmon K, Miller M, Fraser LK, Wright, B "I can't tell my child they are dying".  Helping Parents Have Conversations With Their Child. Archives of Disease in Childhood 2017 March 13
  • Fraser, LK & Norman, P 2016, 'The use of routine data in health research; an example from palliative care'. in SAGE Research Methods Cases.
  • Jarvis, SW, Parslow, RC, Carragher, P, Beresford, BA & Fraser, LK 2016, 'How many Children and Young People with Life Limiting Conditions are clinically unstable?: a National data linkage study'
  • Bogosian, A, Van Vliet, LM, Craig, G, Fraser, LK & Turner-Cobb, JM 2016, 'Minding the gap and moving forward in children's long-term conditions: a vital role for health psychology' vol 21, no. 3., 10.1111/bjhp.12193
  • Woodcock, IR, Fraser, LK, Norman, P, Pysden, K, Manning, S & Childs, A-M 2016, 'The prevalence of neuromuscular disease in the paediatric population in Yorkshire, UK: variation by ethnicity and deprivation status' vol 58, no. 8, pp. 877–883., 10.1111/dmcn.13096
  • Fraser LK, Lidstone V, Miller M, Aldridge J, Norman P, McKinney PA et al. Patterns of diagnoses among children and young adults with life-limiting conditions: A secondary analysis of a national dataset. Palliative Medicine. 2014 Apr 3.
  • Norman P, Fraser L. Prevalence of life-limiting conditions in children and young people in England: Time trends by area type. Health & place. 2014 Mar;26:171-9.
  • Fraser LK, van Laar M, Miller M, Aldridge J, McKinney PA, Parslow RC, Feltbower RG. Does referral to specialist paediatric palliative care services reduce hospital admissions in oncology patients at the end of life? British Journal of Cancer. 2013, 108(6),1273-79.
  • Fraser LK, Miller M, Aldridge J, Norman P, Hain R, McKinney PA, Parslow RC. Rising National Prevalence of Life Limiting Conditions in Children in England. Pediatrics 2012 129 (4) e923-e929
  • Fraser LK, Aldridge J, Childs AM, Miller M, McKinney PA, Parslow RC. "A cohort study of children and young people with progressive neuromuscular disorders; clinical and demographic profiles and changing patterns of referral for palliative care" Palliative Medicine. 2012 26;924-929
  • Fraser LK, Manning S, Miller M, McCullough R, Aldridge J  Childs AM.Hospice Provision and Usage amongst young people with Neuromuscular Disease in the United Kingdom. European Journal of Paediatric Neurology 2011. 15(4):326-330 Jul 2011
  • Fraser LK, Miller M, McKinney PA, Parslow RC, Feltbower RG. Referral to a Specialist Paediatric Palliative Care Service in Oncology Patients in Yorkshire, UK. Paediatric Blood and Cancer 15 Dec 2010
  • Fraser LK, Fleming T, Miller M, Draper ES, McKinney PA, Parslow RC. Palliative Care Discharge from Paediatric Intensive Care Units in Great Britain. Palliative Medicine 24(6):608-615 Sep 2010
  • Fraser LK, Miller M, Draper ES, McKinney PA, Parslow RC. Place of Death and Palliative Care following discharge from Paediatric Intensive Care Units. Archives of  Disease in Childhood 06 Jul 2010
  • Taylor LK, Miller M, Joffe T, Parslow RC, Aldridge J, Bailey CC, McKinney PA. Palliative care in Yorkshire, UK 1987-2008: survival and mortality in a hospice. Archives of Disease in Childhood 95(2):89-93 Feb 2010