Julia is a paediatric palliative care researcher, within the newly established Martin House Research Centre, which conducts research on the care and support of children and young people with palliative care needs, their families and the palliative care workforce.
Julia has a background in applied health sciences and health psychology. Between 2012-2018, Julia worked on projects within the Academic Unit of Palliative Care at the University of Leeds, which focused upon patients with advanced cancer and their families, their experiences of living with a life-limiting condition, pathways through services, transitions between services, and transitions along the disease trajectory from diagnosis to end-of-life. Julia has expertise in applying a range of qualitative methods to explore the care and support of people with life-limiting conditions, their families, and the palliative care workforce, through working collaboratively with internal and external partners in order to ensure impact.
In 2018 Julia joined SPRU and is working on projects including exploring parents’ experiences of the early days of bereavement and GP involvement in paediatric palliative care. Her main research interests include: paediatric palliative care; primary palliative care; transitions; and bereavement support.
PhD (Health Psychology), The University of Leeds
MSc (Health Psychology), Coventry University
BSc (Psychology/Philosophy), The University of Leeds
Current / recently completed research
Supporting the complete care of children and young people with life-threatening or life-shortening conditions, and their familiesAugust 2020 - September 2022
The aim of this study is to gather evidence the NHS and children's hospices can use to guide how they meet the pastoral, spiritual and religious needs of children and young people living with a life-threatening or life-shortening condition, and their families.
The Early Days Project: parents’ experiences of the early days of bereavement and the support they receive from children’s hospicesMay 2018 - December 2020
This project is about parents’ experiences of the very early days of bereavement and how the support receiving during those early days affects longer-term grief processes and outcomes.
Co-supervisor of Sarah Batt, Academic Unit of Elderly Care and Rehabilitation, University of Leeds: An in-depth inquiry into how stroke patients are supported with eating and drinking in stroke-units.
Julia is interested in supervising PhD students in the following areas: paediatric palliative care; primary palliative care; bereavement support; advanced cancer; patient and health professional decision-making; illness trajectories; qualitative methods research.