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Models of Care for Children with Medical Complexity

Children with Medical Complexity (CMC) have multiple care needs. Evidence suggests that these are not currently being met by health and social care services. This can lead to multiple attendances, prolonged hospital stays, including PICU admissions and sub-standard care. Poor care coordination can also lead to conflict with families and breakdown in care and litigation.

There is limited literature regarding new models of care and a need to redesign care services for patients with medical complexity.

This study aims to describe current models of care and identify barriers and facilitators to delivering high quality care for patients with medical complexity. 

This study will use a qualitative methodology, a purposive sampling technique will be used through National Organisations such as the Children’s Hospital Alliance, Co-Lab and directly through Medical Directors and Clinical leads. Parents will be identified through local trusts. Semi-structured interviews will be undertaken with clinicians and parents via telephone or face to face. We aim to recruit 15-20 parents and 20-30 clinicians. Thematic analysis of data will be used to analyse results, identify themes and identify core indicators to assess the quality of care for patients with medical complexity. A formal report will be published to disseminate the research outputs.