Programme and Presentations

09:15

REGISTRATION AND COFFEE

10:00

Welcome

10:05 

Plenary: An introduction to the Martin House Research Centre (PDF , 2,921kb)

Dr Lorna Fraser (Director, Martin House Research Centre)

10:20

Plenary: Using evidence to inform change: an example from Scotland (PDF , 1,792kb)

Dr Pat Carragher (Medical Director, Children's Hospices Across Scotland)

Unpacking sensitivity: methodological challenges of undertaking sexuality research with young adults with life-limiting and/or life-threatening conditions (LLTCs) (PDF , 2,248kb)

Maddie Blackburn (The Open University) 

A meta-ethnography of parents' experiences of their children's life-limiting conditions (PDF , 938kb)

Gianina-Ioana Postavaru (Bishop Grosseteste University)

Conflicts between families and medical teams: lessons to be learned from (almost) 30 years of litigation regarding seriously ill children in England and Wales (PDF , 406kb)

Veronica Neefjes (University of Manchester)

Place bonding at a children's hospice (PDF , 564kb)

Helena Dunbar (DeMontfort University)

11:55

Research design and methods slot (1):

Economic evaluation: what is it and why do we need to do it? (PDF , 851kb)

Helen Weatherly (Centre for Health Economics, University of York) 

12:15

LUNCH and POSTER VIEWING

13:15

Plenary: Measuring individual-level outcomes in palliative care: why and how (PDF , 1,327kb)

Prof. Fliss Murtagh (Hull York Medical School; Supportive Care, Early Diagnosis and Advanced Disease Research Group (SEDA), University of Hull)

A chief executive's response: Martin Warhurst (Martin House Children's Hospice)

Questions and discussion

The journey through care: a realist inquiry into the delivery of palliative care for children, young people and their families (PDF , 1,577kb)

Sarah Mitchell, Anne-Marie Slowther, Jane Coad, Jeremy Dale (University of Warwick) 

Advance care planning in paediatric palliative care: a two year review of practice in a UK tertiary paediatric palliative care service (PDF , 607kb)

Lizzie Bendle, Joanna Laddie, Kathy Gilbert, Emily Hellewell (Evelina London Children's Hospital) 

Palliative care for young people with life-limiting illness: what should we be teaching specialist palliative care trainees (PDF , 1,110kb)

Amelia Stockley, Karen Forbes (University of Bristol) 

14:45

TEA BREAK and POSTER VIEWING

15:05

Research design and methods slot (2):

National datasets: a rich (and under-used) seam of information (PDF , 5,338kb)

Dr Roger Parslow (Senior Lecturer, University of Leeds; Principal Investigator, Paediatric Intensive Care Audit Network)

15:20

Plenary: Conversations about end of life (PDF , 594kb)

Prof. David Abbott (University of Bristol) 

Clinicians' responses: Dr Anne Marie Childs, Consultant Paediatric Neurologist; Sue Manning, Neuromuscular Care Advisor (Leeds Teaching Hospitals NHS Trust)

Questions and discussion

16:10

Concluding comments

16:15

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