Accessibility statement

Family carers' perceptions of their educational needs when providing end of life care

Family carers play a significant and important role in ensuring that people with cancer and other life threatening diseases can be cared for in their own home. Carers often need to develop new skills such as: how to provide physical care, how to manage symptoms such as pain or breathlessness, in addition to maintaining a balance between their own needs and those of the person they are caring for in order to remain well. Carers also need to cope with the idea that their caring role will end with the death of the person they look after. Several different ways of helping carers with their caring role have been devised. These have been shown to enhance their ability to continue their role and reduce their distress.

The research is using meta-ethnography to synthesise qualitative research exploring carers’ views about how they are taught to care for people with cancer and other life threatening diseases. Undertaking this work will help develop a more full and extensive understanding of these views, enabling improvements to be made in the way education for carers is planned and taught in the future. This in turn, will ensure the most appropriate care is available for the patient who is ill, in addition to ensuring policy and practice can best support the needs of all members of the family involved in end of life care.



Funder(s): Dimbleby Marie Curie Cancer Care 
Start Date: September 2012 
Expiry Date:  March 2014


Internal Staff


External Collaborators

  • Emi Brough
  • Chris Ward

Public Health and Society Research in the Department of Health Sciences