Posted on 30 June 2022
The team, led by Professor Lorna Fraser, received the PIER (Paediatric Involvement and Engagement in Research) Award from the National Institute for Health Research (NIHR) and the Royal College of Paediatrics and Child Health (RCPCH).
MHRC carries out research into the care and support of children and young people with life limiting conditions or medical complexity, their families and the workforce that care for them. The research centre is a partnership between Martin House Children’s Hospice, the University of York and the University of Leeds.
The award recognises the MHRC team’s partnership work including the development of a Family Advisory Board (FAB) of parents and carers and a young people group. The MHRC team works with FAB on all their research studies.
Professor Fraser said: “We are committed to working with children, young people and their families to make sure our research is informed and shaped by them. We have a portfolio of nearly 30 studies - these are all informed by our Public Patient Involvement (PPI) work and without their input this research could not be undertaken.”
She added: “We can only do this valuable work with the support of the parents, carers and young people. I am humbled by how much time and input they are willing to give to work with us.
“I would also like to thank Martin House and The True Colours Trust for recognising the need to provide funding for our PPI work to ensure that we have resources to work closely with the families.”