Posted on 17 September 2014
The special launch event takes place from 4-7pm on 17 September at Winchester House, London. Speakers will include Professor Jenny Kitzinger, Professor Celia Kitzinger, Professor Lynne Turner-Stokes, Chair of the Royal College of Physicians’ working party that wrote the national clinical guidelines for the treatment of prolonged disorders of consciousness, and Professor David Menon, Head of the Division of Anaesthesia at the University of Cambridge. Guests attending include family members involved in the project, clinicians, practitioners, charity representatives and health correspondents. An exhibition featuring artwork, poems and postcards from family members will also be on display during a drinks reception.
The new resource has been compiled by Professor Celia Kitzinger and Professor Jenny Kitzinger, Co-Directors of the York-Cardiff Chronic Disorders of Consciousness Research Centre (CDOC), and is hosted by the award-winning charity website healthtalkonline.org at
The resource presents findings from nearly four years’ research funded by C2D2, the Economic and Social Research Council (ESRC), and the Health Experiences Research Group (HERG) in the Department of Primary Care Health Sciences at the University of Oxford. It features interviews with 65 different family members as well as talks from leading medical practitioners in the field of serious brain injury.
This new section of healthtalk.org will provide support and information for families, health professionals, case workers, lawyers and others involved in work with this group of patients. Helping to improve communication between medical practitioners and family members, it will also be useful in professional training for those working within health services and law, and for journalists reporting on issues around ‘coma’.
Professor Derick Wade, a neuro-rehabilitation consultant from the Oxford Centre for Enablement, said: “It is an excellent website and should be the resource for Health Care professionals, including managers and commissioners, because it covers all aspects and presents most of the possible points of view. It is well laid out and can be read, listened to and looked at in small bits easily.”
- C2D2 Administrator
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