MRes Social Policy (University of York), BA (Hons) Social Studies (Newcastle Upon Tyne)
Standardised measures for people living with dementia: experiences, observations and implications.
Relatively little is known about the practice and implications of using standardised research measures with people living with dementia at different degrees of severity. It is crucial that we learn more about the ways that dementia symptoms and their progression can affect both the quality (reliability and validity) of quantitative data, and the experiences of research participants.
I plan to investigate the quantitative data collection encounter from the perspectives of participants living with dementia and research workers administering standardised measures. I will also consider the impact of dementia symptoms as they change over time, combined with the interview context and questionnaire content, on the types and quality of data collected.
I teach a session on life story work for the Social Work Masters students.
Parker, G.M., Gridley, K., Birks, Y.F. & Glanville, J. (In press). Using a systematic review to uncover theory and outcomes for a complex intervention in health and social care: Life Story Work for people with dementia as a worked example. Journal of Health Services Research & Policy.
Gridley, K., Birks, Y. & Parker, G. (2020). Exploring good practice in life story work with people with dementia: The findings of a qualitative study looking at the multiple views of stakeholders. Dementia, 19(2), 182-194.
Brooks, J., Gridley, K. & Parker, G. (2019). Doing research in care homes: the experiences of researchers and participants. Social research practice, 8(Autumn), 19-27.
Longo, F., Neves De Faria, R.I., Parker, G.M., Gridley, K., Aspinal, F.J., Van Den Berg, B. & Weatherly, H.L.A. (2019). Investigating the economic case of a service to support carers of people with dementia: a cross-sectional survey-based feasibility study in England. Health and Social Care in the Community. https://doi.org/10.1111/hsc.12799
Gridley, K., Aspinal, F.J., Parker, G.M., Weatherly, H.L.A., Neves De Faria, R.I., Longo, F. & Van Den Berg, B. (2019). Specialist nursing support for unpaid carers of people with dementia: a mixed-methods feasibility study. Health Services and Delivery Research, 7(12), 1-232. https://doi.org/10.3310/hsdr07120
Brooks, J., Gridley, K. & Savitch, N. (2017). Removing the 'gag': involving people with dementia in research as advisers and participants. Social Research Practice, pp.3-14.
Gridley, K. (2016). Understanding the outcomes of life story work in P. Kaiser and R. Eley (eds.) Life Story Work with People with Dementia: Ordinary Lives, Extraordinary People. Jessica Kingsley Publishers. https://www.amazon.co.uk/Life-Story-Work-People-Dementia/dp/184905505X
McKeown, J., Gridley, K. & Savitch, N. (2016). Identifying and Overcoming Challenges in Life Story Work in P. Kaiser and R. Eley (eds.) Life Story Work with People with Dementia: Ordinary Lives, Extraordinary People. Jessica Kingsley Publishers. https://www.amazon.co.uk/Life-Story-Work-People-Dementia/dp/184905505X
Gridley, K., Brooks, J.C., Birks, Y.F., Baxter, C.R. & Parker, G.M. (2016). Improving care for people with dementia: development and initial feasibility study for evaluation of life story work in dementia care. Health Services and Delivery Research. ISSN 2050-4357
Gridley, K., Brooks, J. & Glendinning, C. (2014). Good practice in social care: the views of people with severe and complex needs and those who support them. Health & social care in the community 22(6), 588–597.
Gridley, K., Brooks, J. & Glendinning, C. (2014). Good practice in social care for disabled adults and older people with severe and complex needs: evidence from a scoping review. Health and Social Care in the Community 22(3), 234–248
Gridley, K., Spiers, G., Aspinal, F., Bernard, S., Atkin, K. & Parker, G. (2012). Can general practitioner commissioning deliver equity and excellence? Evidence from two studies of service improvement in the English NHS. Journal of health services research & policy, 17(2), 87-93.
Gridley, K., Aspinal, F., Bernard, S. & Parker, G. (2011). Services that promote continuity of care: key findings from an evaluation of the national service framework for long‐term neurological conditions. Social Care and Neurodisability. 2(3). 147-157.
Gridley, K., Brooks, J. & Glendinning, C. (2012) Good support for people with complex needs: What does it look like and where is the evidence? Research Report. SSCR Research Findings. NIHR School for Social Care Research , London. http://eprints.whiterose.ac.uk/76743/
Aspinal, F., Gridley, K., Bernard, S. & Parker, G. (2012). Promoting continuity of care for people with long‐term neurological conditions: the role of the neurology nurse specialist. Journal of advanced nursing, 68(10), 2309-2319.
Bernard, S., Aspinal, F., Gridley, K. & Parker, G. (2012). Benchmarking integrated care for people with long‐term neurological conditions. Journal of Integrated Care.20(3) 152-163.
Spiers, G., Gridley, K., Cusworth, L., Mukherjee, S., Parker, G., Heaton, J. ... & Wright, D. (2012). Understanding care closer to home for ill children and young people. Nursing children and young people, 24(5). 29-34.
Parker, G., Spiers, G., Gridley, K., Atkin, K., Cusworth, L., Mukherjee, S. ... & Light, K. (2011). Evaluating Models of Care Closer to Home for Children and Young People who are Ill: Main report, Southampton: NIHR Service Delivery and Organisation programme, pp. 249.
Bernard, S., Aspinal, F., Gridley, K. & Parker, G. (2010). Integrated Services for People with Long-term Neurological Conditions: Evaluation of the Impact of the National Service Framework: Final Report, York: Social Policy Research Unit, University of York, pp. 327.
Bernard, S., Aspinal, F., Gridley, K. & Parker, G. (2010). Integrated services for people with long-term neurological conditions: Evaluation of the impact of the National Service Framework, Research Works, York: Social Policy Research Unit, University of York, pp. 4.
Bernard, S., Aspinal, F., Gridley, K. & Parker, G. (2010). National Benchmark of Services for People with Long-term Neurological Conditions (LTNCs), York: Social Policy Research Unit, University of York, pp. 33.
Parker, G., Bernard, S., Gridley, K., Aspinal, F. & Light, K. (2010). Rapid Systematic Review of International Evidence on Integrated Models of Care for People with Long-term Neurological Conditions: Technical Report, York: SPRU, University of York, pp 282.
I have a background in community involvement and health service commissioning and now work as a qualitative researcher at the University of York’s Social Policy Research Unit (SPRU) within the School for Business and Society. I have a particular interest in research involving people with dementia and their carers, and have led and worked on several studies in this area, including an evaluation of life story work with people with dementia and a study of specialist nursing services for carers of people with dementia. I am currently working on Workstream 4 of the DETERMIND project with Dr Kate Baxter and Professor Yvonne Birks. My PhD research will be attached to this project, looking at the experiences of people with dementia when they complete standardised questionnaires.