More support needed for adult siblings of people with autism
Posted on 9 November 2011
An 18-month qualitative research study by the University’s Department of Health Sciences, funded by the Economic and Social Research Council (ESRC), explored the experiences of adult siblings at different life stages and identified their support needs now and in the future.
Our research identified that not enough practical and emotional support is provided to parents and siblings on how to manage a child’s autism
Dr Rosemary Tozer
They found that sibling relationships are lifelong and two-sided, often characterised by strong feelings and loyalties. However, the significance of these relationships has generally been overlooked in policy, practice and research, with little support available to siblings.
Dr Rosemary Tozer, from the Department of Health Sciences, said: “At present, the needs of adult siblings are not considered in practice, although their particular experiences and perspectives could make a valuable contribution in policy and service development.
“Our research identified that not enough practical and emotional support is provided to parents and siblings on how to manage a child’s autism and we are recommending that this support should be provided as a matter of course, not just in a crisis.”
For more information visit http://www.york.ac.uk/news-and-events/news/2011/research/autism-support/