Your Tube Study

There are increasing numbers of children with complex health care needs that require having all, or part, of their nutritional intake via gastrostomy feeds. The recommended feed for children via gastrostomy is commercially produced formula. However, there is a growing body of parents who are interested in and/or choosing to feed their children home-blended meals. These parents report benefits such as improved gastro-oesphageal reflux symptoms, less constipation and less distress in their child. The need for further research in this area has come from a research prioritisation exercise, review of the literature and professional organisations eg. British Dietetic Association.

The overall research question for this two stage study is:

What are the risks, benefits and resource implications for using home-blended food for children with gatrostomy tubes compared to currently recommended formula feeds?

The objectives are:

  • To identify the important outcomes of gastrostomy feeding for parents, young people and health professionals.
  • To assess the safety of home-blended diets for children who are gastrostomy fed compared to liquid formula diets.
  • To identify and quantify the benefits of home-blended diets compared to liquid formula diets for children who are gastrostomy fed and their parents.
  • To identify and quantify the resources (family and statutory services) required to support home-blended diets compared to liquid formula diets.
  • To assess whether long-term follow-up of children who are gastrostomy fed is feasible using routine data sources.

Funding

Funder(s): NIHR HTA
Start Date:  October 2018
Expiry Date:  March 2022

Members

Internal Staff

External Collaborators

  • Janet Cade, University of Leeds
  • Karen Horridge, City Hospitals Sunderland NHS Foundation Trust
  • Alison McCarter, Somerset Partnership NHS Foundation Trust

Public Health and Society Research in the Department of Health Sciences