CII's Dr Fabiola Martin attended the Rare Disease Day 2014 reception at the House of Commons

Posted on 12 March 2014

Dr Martin represented rare sexually transmitted diseases at the Rare Disease Day reception at the House of Commons on 26 February 2014.

As part of Rare Disease Day, an annual international awareness-raising event launched by EURORDIS and its Council of National Alliances in 2008, Dr Fabiola Martin was invited to attend the Rare Disease Day 2014 reception at the House of Commons.

Attending with an HTLV patient Dr Martin represented rare sexually transmitted diseases at the event. Subsequently, Dr Martin was invited by the Director of Rare Disease UK , Alastair Kent OBE, to 'join in our work to raise awareness and help with the implementation on the UK Strategy'. 

The Human T-lymphotropic virus (HTLV) is a retrovirus, which is transmitted similar to HIV but has a very different outcome. Thirty years since its discovery, there is still no treatment to suppress HTLV and more funding is urgently needed to move this field forward.  Together with Shaan Bassi, a York Biology graduate, Dr Martin has set up a successful patient HTLVaware website and Tweet, which has 2,720 followers.

Photo courtesy of Rare Disease UK/ Josh Tucker.