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REF Project Team
|KNOWLEDGE BASE - ethics resources from UK, Europe and the World
This resource will be added to over the coming months, focusing on resources that complement Research Ethics Framework activities. If you have a website or other resource you would like to see included here, send us details.
Global guidelines and documents
Government, NHS, and other key resources
Outside UK and Europe
- Central Office for Research Ethics Committees (COREC) ~ co-ordinates the development of operational systems for Local and Multi-Centre Research Ethics Committees (LRECs and MRECs), on behalf of the National Health Service in England and several other related tasks. Includes useful round-up of links to sites relevant to its responsibilities.
- UK Research Ethics Committees ~ all relevant current regulations and references concerning policy for, and operation of, RECs will be available shortly on this site, currently under construction.
- Working Group on Ethical Review of Student Research in the NHS ~ COREC body providing advice on how ethical review of student research might best be undertaken, within remit of the wider Research Governance Framework. Recently published analysis and draft proposal to establish Student Project Ethics Committees (SPECS).
- Ethics Review in Social Care Research: Option Appraisal and Guidelines ~ proposed procedures and guidelines for ethics review of social care research, by Jan Pahl, University of Kent, July 2004.
Ethics Review of Social Care Research: Options Appraisal
Guidelines - consulation ~ Department of Health public consultation from September 2004 to 31 December 2004 on proposed ethics review of social care - see document above.
- Doing the Right Thing. Outlining the Department for Work and Pensions approach to ethical and legal issues in social research ~ guidance for DWP staff when commissioning research (consultation draft - published August 2003).
- Regulation of Investigatory Powers Bill ~ UK legislation relating to interception of communications, intrusive investigative techniques and access to encrypted data.
- Economic and Social Data Service (ESDS) ~ advice to prospective depositors regarding copyright, data protection, informed consent, and confidentiality, from the UK Economic and Social Data Service (ESDS).
Research funding agencies
- Economic and Social Research Council: Research Ethics and Confidentiality ~ main funding agency for the social sciences in the UK, and sponsor of the Research Ethics Framework project.
- Medical Research Council ~ principal UK funder of medical research. Includes patient information in medical research, together with other MRC ethics guidelines.
Academic centres for ethics research
- Centre for the Study of Global Ethics ~ hosts the PropEur project, a EU-funded project to compare and analyse ethical and legal guidelines applicable to new biotechnologies and related areas, in addition to a number of other projects.
- ESRC Research Methods Programme ~ the Programme forms part of the UK ESRC's strategy to improve the standards of research methods across the UK social science community. Useful site related to research ethics, based at the Centre for Survey Research, University of Manchester.
- University of Southampton 'informed consent and the research process' project ~ part of the ESRC Research Methods programme, with four papers plus an annotated bibliography, with more resources to be added in the months ahead. The project will identify and disseminate best practice in relation to informed consent for researchers working in the areas of childhood, youth, ageing and health.
Professional Associations, Learned Societies and Other Bodies
- Association of Social Anthropologists-Ethical guidelines ~ interesting discussion on ethics from the ASA's Chair, plus Position Paper, ASA guidelines and other material.
- Ethical Guidelines for Educational Research (2004) ~ recently released revision of guidelines from BERA (British Educational Research Association).
- British Sociological Association: Statement of Ethical Practice ~ ethics codes produced by the BSA, March 2002.
- British Psychological Society: Code of Conduct ~ Code of Conduct, Ethical Principles & Guidelines, published 2000.
- Nuffield Council on Bioethics ~ leading UK body examining bioethics across a range of contemporary issues. Recent reports include pharmacogenetics, human tissue use, genetic testing, and other areas.
- Royal College of Nursing ~ research ethics guidance for nurses involved in research or any investigative project involving human subjects.
- Social Research Association (SRA) Code of Ethics ~ leading UK social research organisation (in word format).
- UK Market Research Society: Code of Conduct
Research ethics committees
- Association of Research Ethics Committees ~ 'independent, self-governing body of Research Ethics Committees, local and multi-centre, including their members and administrators', providing training and advice and 'the opportunity to speak with one voice about the many difficult issues they face'. Dec 2003 newsletter debates idea of professionalising RECs.
We welcome feedback and suggestions.
Please send comments to: Research Ethics