Personalisation and Carers: Whose assessment? Whose support plan? Whose budget?

Wednesday 24 April 2013, 1.45PM to 4.15pm

Speaker(s): Wendy Mitchell, Jenni Brooks and Caroline Glendinning, Social Policy Research Unit, University of York

 24 April 2013 (MS Word , 85kb)

Current policy andpractice in English adult social care emphasises the rights of disabled andolder people to have choice and control over their own, personalised supportarrangements through personal budgets. Family carers have also secured rights,to assessments of their needs and support to meet these needs. However, thesepolicies have developed separately with little consideration of theinterdependencies between disabled people and their carers, and theirimplications for social care practice.

 The NIHR School forSocial Care Research (SSCR) commissioned the Social Policy Research Unit (SPRU)to conduct a study exploring how policy and practice in English adult socialcare balances the needs of older and disabled people and their family carers,in the assessment, planning, ongoing management and review of personal budgets.The study examined managers’ perspectives, every-day practice of staff and theexperiences of disabled and older people and their carers using a survey, focusgroups and individual interviews.

Key findings include:

Carer involvement was valued by carers, service users and staff (managers and practitioners)Carers were usually present at service user assessments and were asked about their willingness to continue providing support but questions about their own needs as carers were more limited practice regarding how and when to conduct assessments (and reviews) of carers own needs was inconsistent and raised challenges for practitioners. Balancing the needs and wishes of service users and carers around holistic family assessments and rights to separate assessments was not easy.Carers were involved in planning service user support but it was unclear how information from separate carer assessments informed service user budgets and support plans


The seminar willpresent the findings from the research and the personal experiences and lessonslearnt from the perspective of a parent carer and her journey through theprocess of personalisation with her disabled adult daughter. Breaking intosmall groups, participants will be encouraged to discuss study findings, sharetheir own practice experiences and consider some of the implications that thestudy raises for future practice and development when working with serviceusers and carers during processes of personalisation.


SPRU at the University of York has a long-established reputation forconducting world-class research on disability, social care and family care. SPRU has been awarded the Queens Anniversary Prize in recognition of theimpact that its research has had over the years on social policy and practice. SPRU is a member of the NIHR SSCR.  SSCR-funded projects have explored choiceand control for a range of service users, such as those with severe and complexneeds, young adults with physical disabilities and older people, their families and carers.  

Location: Kings Manor, York

Admission: See flyer for details


Telephone: 01904 321237