Thursday 12 May 2011, 9.30AM to 12.45pm
Speaker(s): Rosemary Tozer, Research Fellow, Department of Health Sciences, University of York; Monica McCaffrey, Director, Sibs; Professor Karl Atkin, Department of Health Sciences, University of York
Booking is required to attend this event.
This seminar is open to practitioners from both adults and children’s services, as well as health partners and voluntary organisations. Whilst the research being disseminated looks specifically at adult siblings, the seminar will be of interest to those working with siblings across the lifespan, and especially those working in transitions teams.
Relationships between siblings are the longest we have and are characterised by mixed, sometimes conflicting, emotions. Within families where a child has a severe disability such as autism, such relationships are complicated by the extra care and attention that child needs, and the idiosyncrasies of their behaviours, communication and understanding.
Awareness of the impact on children growing up with a brother or sister with autism has increased in recent decades. However siblings often become invisible to services once they have left the family home. A recently completed qualitative research study at the University of York, has explored the continuing impact, current involvement and future concerns for adult siblings.
Twenty one adult siblings took part in interviews in which they reflected on their experiences growing up, and on current and future issues; twelve of their brothers and sisters with autism also took part in the research, as did a range of professionals. The research team are collaborating with Sibs, the UK charity for people who grow up with a disabled brother or sister, in many of their dissemination activities.
Key findings from the research include:
In this seminar, delegates will hear the full findings from this research study, and have the opportunity to ask the research team questions. There will also be smaller group discussions designed to offer practitioners the chance to reflect on what they have heard, and begin to consider how they and their organisations can develop effective responses through the services they deliver.
Location: Innovation Centre, York Science Park
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