Accessibility statement

Identification of the Centre’s Research Priorities

One of the Centre’s first pieces of work was a project to identify research priorities.  There were two stages to this project.

A systematic scoping review

First, we conducted a systematic scoping review of existing research prioritisation exercises relevant to children with life-limiting conditions, their families and the staff who care for and support them. 

We reviewed the findings from 24 existing research prioritisation exercises (RPE). The published paper can be seen here:

The search strategies used can be accessed here: RPE search strategies (PDF , 607kb)

All the research priorities listed by topic can be accessed here: Table of Research priorities (PDF , 895kb)

The protocol for this review can be seen here:Protocol for Scoping Review of Research Prioritisation AMENDMENTS 10_05_17 (PDF , 396kb)

Consultation with key stakeholder groups

Next, we shared the findings from that review with key stakeholder groups at an event held at the university in September 2017.  Young people, parents, doctors, nursing and care team staff, other allied health professionals, clinical psychologists, chaplains, heads of children’s palliative care services and members of the research community attended.  They considered the findings from our review and identified issues and topic areas not identified by existing research prioritisation exercises.  The young people, parents and different groups of professionals then nominated topics which they believed should be prioritised by the Martin House Research Centre. 

A full report of this event, and a summary of findings, can be accessed here: MHRC research priorities consultation event report (PDF , 1,114kb)

The outputs from this event will be used in an on-going way to steer and inform the work of the Centre.  We are continuing to consult with stakeholder groups through a number of mechanisms including the Centre’s Advisory Board and Parent Advisory Panel.  We will shortly be establishing a Young People’s Forum. 

For further information, please contact:

Bryony Beresford 


Start Date: January 2017
End Date: September 2017 - COMPLETED