HMRN is a comprehensive population-based register that effectively links diagnostics and prognostics with data on outcome and treatment, providing a unique opportunity to gain insight into aspects of haematological cancer that cannot be studied elsewhere.
BABY is a long term study which aims to track a large group of babies born in Yorkshire, and their parents, from pregnancy onwards. A wide range of information about the health and well-being of babies and their parents will be collected when they enter the study, and at intervals in the future.
The LLR Childhood Leukaemia CellBank aims to collect samples of bone marrow and other tissue donated by children diagnosed with leukaemia and other related disorders in the UK. These samples are banked to build up a resource that will be used by researchers to help understand childhood leukaemia with the aim of developing improved diagnosis treatment. CellBank also hold a collection of HLA-typed normal cord blood donations.
The European Myelodysplastic Syndrome (MDS) Registry is an initiative of the LeukaemiaNet MDS Work Package (www.leukemia-net.org). It is a prospective study aiming to collect information on newly diagnosed patients with Low or Intermediate-1 Score according to the International Prognostic Scoring System.
The UKCCS was set up to investigate a broad range of possible causes of childhood cancer including the potential carcinogenic effects of both ionizing and non-ionizing radiations, chemicals and drugs, as well as infectious agents. In addition to examining these physical, chemical and biological environmental exposures, studying the relationship with other health states and events, both in the child and their parents.
CDSS is a landmark study set up with the support of the Down's Syndrome Association, the Down's Syndrome Medical Interest Group, families of children with Down's Syndrome, health professionals and researchers in order to learn more about the health of children with Down's syndrome. Children in the study will be followed from birth onwards. The information gathered will help to understand their health in order to improve healthcare delivery to all children with Down's syndrome.
The ELCCS was set up by ECSG in 1998 to investigate possible causes of lymphoma. Environmental and lifestyle exposures such as smoking, alcohol and obesity; a family history of disease and other genetic factors; and preceding illnesses and health events are some of the areas of research we are interested in. As lymphomas are recognized as a group of diseases with varied clinical features, the examination of risk factors by the different lymphoma subtypes is a particular feature of ELCCS.